PHA UK Forum : On our travels again http://www.phassociation.uk.com/forum/ This is an XML content feed of; PHA UK Forum : General Chat : On our travels again Thu, 23 May 2013 00:52:41 +0000 Thu, 28 Apr 2011 20:18:39 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 10.14 360 www.phassociation.uk.com/forum/RSS_post_feed.asp?TID=252 PHA UK Forum http://www.phassociation.uk.com/forum/forum_images/phauklogo.gif http://www.phassociation.uk.com/forum/ On our travels again : Rita I know that operations are... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2947&title=on-our-travels-again#2947 Author: Annie**
Subject: 252
Posted: 28 Apr 2011 at 8:18pm

Rita I know that operations are properly scrutinized by more than one person - what i am on about is the fact that very often we are told different things by different doctors - everything is just their opinion and nothing more.  ]]> Thu, 28 Apr 2011 20:18:39 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2947&title=on-our-travels-again#2947 On our travels again : Thank you everyone - your support... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2938&title=on-our-travels-again#2938 Author: margwxs
Subject: 252
Posted: 28 Apr 2011 at 3:46pm

Thank you everyone - your support is really appreciated. I know it would have been more than one Drs decision before the operation would have proceeded, but I am just shocked that a Dr could say what she did to me, in October!! Good job I didn't let her make me cancel my holiday, as I would have been annoyed about that!!!
I do know, from Dr Joanna, that there is a nodule showing on my Lung CT's which they are not sure what it is, but on the CT this week, it is no bigger, but they will scan lungs every 12months to watch for any changes. It could be due to a number of things.
I have definitely got to go and see a Rheumatologist when we get home, as there are 2 sorts of antibodies in my blood, which are indicators of some sort of Rheumatological disorder - I know I have joint problems, and have had for many years but they were reasonably well controlled by anti inflammatories. Since they were stopped by Papworth last October, I certainly know about it as my joints have really been playing up!!
Hope everyone enjoys this long bank holiday weekend
Regards
Margaret
]]> Thu, 28 Apr 2011 15:46:44 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2938&title=on-our-travels-again#2938 On our travels again : That is great new Margaret and... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2928&title=on-our-travels-again#2928 Author: Rita
Subject: 252
Posted: 27 Apr 2011 at 8:33pm

That is great new Margaret and you must be very pleased you don't have
to go back for 6 months, and I agree Papworth is a marvellous hospital.
 
Annie** it would not have been 1 doctors decision to proceed with a PTE it
would have been a team of doctors, and then a meeting with the surgeon,
before the decision was made.
 
Well Margaret hope you do get to have a blow and you hit all the right notesWink
 
Take care
Rita x
]]> Wed, 27 Apr 2011 20:33:58 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2928&title=on-our-travels-again#2928 On our travels again : Wonderful news for you Margaret... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2927&title=on-our-travels-again#2927 Author: Annie**
Subject: 252
Posted: 27 Apr 2011 at 8:11pm

Wonderful news for you Margaret but it just makes me feel more insecure about doctors and their plans for us.  we put our trust in them and what they decide they want to do for us - what if you had said 4 months ago that you did want that Endarterectomy and they proceeded - makes me feel very insecure.  I am so glad that you dont have to have the op.
 
Have fun in your travels xxxxxxxxxxxxxx and have a good blow xxxxxxxxxxx
]]> Wed, 27 Apr 2011 20:11:41 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2927&title=on-our-travels-again#2927 On our travels again : Good to hear that you got on well... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2926&title=on-our-travels-again#2926 Author: debsie
Subject: 252
Posted: 27 Apr 2011 at 7:29pm

Good to hear that you got on well at Papworth,hope you enjoy your weekend with the band,and good to know that you feel up to having a blow with them soon take care love Debbie x]]> Wed, 27 Apr 2011 19:29:50 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2926&title=on-our-travels-again#2926 On our travels again : Enjoy your trip. So glad to hear... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2925&title=on-our-travels-again#2925 Author: Karen
Subject: 252
Posted: 27 Apr 2011 at 3:25pm

Enjoy your trip. So glad to hear you have not got to go back to Papworth for 6 months and sorry to hear about your op that you dont need to have. All the best to you and have a fantastic Weekend  xx]]> Wed, 27 Apr 2011 15:25:50 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2925&title=on-our-travels-again#2925 On our travels again : Do enjoy your blow! I know you've... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2924&title=on-our-travels-again#2924 Author: Miriam
Subject: 252
Posted: 27 Apr 2011 at 3:14pm

Do enjoy your blow!  I know you've been looking forward to that ages. 
 
And how nice that your mind is now at rest that you made the right decision not to have the op!!!  Don't fret about the silly woman.  It would have been worse the other way round.  At least this didn't impact your physical health and now you're a happy bunny.  Just shows, things can always be worse we have to be thankful for small mercies.
 
Most of us had had some doctor or other tell us some nonsense.  Welcome to the club.
]]> Wed, 27 Apr 2011 15:14:49 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2924&title=on-our-travels-again#2924 On our travels again : Hi EveryoneAm going home to caravan... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2923&title=on-our-travels-again#2923 Author: margwxs
Subject: 252
Posted: 27 Apr 2011 at 1:00pm

Hi Everyone
Am going home to caravan this afternoon. All tests completed and don't have to come back for another 6 months.
After being told last October that I needed the Endarterectomy - I should never have been told that I needed it!! The person who is mistook for being Dr Joanna, is no longer here!! And as most of my problems are in the distal parts, it wouldn't do anything to cure that!! Am annoyed that I have spent last 4 months worrying about it before reaching my decision that I was not going to have it done, when I needn't have, but that Dr is no longer here!!
I am greatly relieved about that, and they are happy for me to go and carry on as I have been doing, except for increasing diuretics. I also have to go and see a Rheumatologist in Plymouth, to see if there is anything happening after them finding certain antibodies in blood tests.
I am so thankful that I pushed to come to Papworth, as it is the best hospital I have ever been in, and I understand a PH unit is being set up in Plymouth, under the care of Dr Joanna, which is good news for those of us in the West Country.
Am off to a rally this weekend with the band, and next month hope to have a "blow" with them, at their next engagement. Having a few days in Bristol next week and will get home Saturday next week.
Hope everyone enjoys the extended Bank Holiday weekend and that the weather stays dry!!
Margaret
]]> Wed, 27 Apr 2011 13:00:57 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2923&title=on-our-travels-again#2923 On our travels again : Hi Margaret so pleased you are... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2921&title=on-our-travels-again#2921 Author: Rita
Subject: 252
Posted: 26 Apr 2011 at 8:55pm

Hi Margaret so pleased you are getting on OK at Papworth,glad you see
Joanna she is really very nice. Good luck with your LFTs tomorrow and hope
you are back on your travels soon.
Take care
Rita xx
]]> Tue, 26 Apr 2011 20:55:18 +0000 http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2921&title=on-our-travels-again#2921 On our travels again : Hi everyoneWell here I am at Hotel... http://www.phassociation.uk.com/forum/forum_posts.asp?TID=252&PID=2920&title=on-our-travels-again#2920 Author: margwxs
Subject: 252
Posted: 26 Apr 2011 at 7:46pm

Hi everyone
Well here I am at Hotel de Papworth!! Only discovered today, that the consultant I saw on my first two visits her, was NOT Dr Joannna!! Turns out she was her locum so now have met Dr Joanna, and like the way she tells it to your straight!! They have today decided not to do RHC on this vist!! Phew and soooo glad about that!!Wink So instead I had to have another CT done. LFT's at 8-30am tomorrow, so no lounging about in bed!! LOL With a bit of luck they might let me out tomorrow.
Jess been to see me this afternoon - apparently she has fallen in love with my friends toy poodle called Oscar, same age, and thankfully they have both been "done" at the vets, so can't get up to "naughties"!! They play well together then she flirts with him and pinches his favourite toy when he is looking at her other end!! Not daft is she?? lol.
Hope everyone has had a good Easter and had lovely weather.
Jane - Glad to hear you got your passports eventually - what a  lot of hassle fror you though.
Catch up with you all after the weekend, as we are off to a rally near Dudley, on Saturday, so won't have the internet until next Tuesday.
Good news is I have been told I can go back to blowing with the band if I have the "puff" to do it, so will give it a go next month and see how I get on.
Thank you all for your messages and support.
Best Wishes to you all
Margaret

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