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going abroad |
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darren.rebecca 
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Joined: 07-July-2008 Location: United Kingdom Posts: 145 |
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 Topic: going abroadPosted: 24-June-2010 at 12:14pm |
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We are going to euro disney in July and was wondering if we will need a letter from our doctor with regards to Chloes meds and Epropostenol infusion supplies (whichcontains syringes and hyperdermic needles)
If we do, what sort of thing should the letter say? Thanx in advance |
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Rebecca and Darren x
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chrisanne
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Joined: 12-May-2008 Location: United Kingdom Posts: 93 |
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Posted: 24-June-2010 at 3:02pm |
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Hi ya, good question.... just wondering how you will be travelling (ferry, air, train, car..) I would have thought a 'fit to fly' type of letter/form would be worth having just so the airline knows? if thats how you are getting there but I'm not 100% sure. Maybe a letter from GOSH? Insurance details are on the 'useful web link'/travel' some info on oxygen too ....but I didnt see anything about required forms or letters, unless I missed it? Sorry I'm not much use, but just wanted to say 'have a fantastic time there' and a safe journey. When do you go?
love
Chrissiex
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darren.rebecca
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Joined: 07-July-2008 Location: United Kingdom Posts: 145 |
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Posted: 24-June-2010 at 9:38pm |
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Hi Chrissie, we are travelling by eurostaron the 5th.... Think i'll give GOSH a call tommorrow to double check..and maybe get a leter "just in case" they are funny at the other end lol
and Thanx, Chloe is really excited!! Love to you and Connor xxx |
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Rebecca and Darren x
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Jack
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Joined: 22-November-2009 Location: Southend on Sea, Eseex, Uni Posts: 420 |
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Posted: 24-June-2010 at 9:47pm |
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Hope you all have a great time. Shouldn`t think there will be any problem. Not as if your flying.
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Today may have been bad but tomorrow could be a whole lot better.
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Tracie
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Joined: 23-November-2004 Location: United Kingdom Posts: 902 |
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Posted: 25-June-2010 at 8:25am |
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Hii Darren & Rebecca,
Sounds like fun holiday. Just an idea if you are unsure of things.... Ask Yvette if she could put you in touch with Julie Clarke ( Kierans Mum )..... Julie and Martin have been doing eruo disney on the suro star with Kieran for several years and will know everything you need to know in taking your supplies, as Kieran is also on Epo and other meds...... Julie is really nice and friendly and i know she would happily discuss how that get on with taking everything over the boarder.
Hope this helps. If Yvette can't help you then do let me know as i can speak to julie and ask her to give you a call....
take care and hope you have a fab holiday
Tracie xxxx
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Rita Barnard
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Joined: 26-November-2004 Location: Wales Posts: 775 |
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Posted: 25-June-2010 at 9:57am |
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Hope you have a great holiday
Ritaxx
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To receive a smile, give one away
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karen
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Joined: 22-November-2004 Location: United Kingdom Posts: 2299 |
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Posted: 25-June-2010 at 2:28pm |
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Have a fantastic holiday
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chrisanne
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Joined: 12-May-2008 Location: United Kingdom Posts: 93 |
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Posted: 25-June-2010 at 7:25pm |
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Bonjour once again & just a thought but dont mention the 'futty' (sorry if anyone is French just kidding)...
 Please would you let us know if you have been able to sort out the requirements for travelling and photos are a must if you can xxx have a Walt Disney whale of a time and take care.
xx
Chrissie
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LozK
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Joined: 15-January-2007 Location: United Kingdom Posts: 2244 |
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Posted: 25-June-2010 at 8:58pm |
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I've never had a problem with taking meds overseas but I do take a letter from Sheffield with me. One word of advice when travelling through France...take spares if you can just in case the French fishermen blockade the ports as that snarls up the Chunnel. We got caught when returning from Provence last year and I was working out how long I could survive on half rations of Bosetan and other meds (if any of the RHH staff are reading this ignore it
 ).
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Simples!!!
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darren.rebecca
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Joined: 07-July-2008 Location: United Kingdom Posts: 145 |
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Posted: 25-June-2010 at 11:30pm |
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Thanx for that Loz- will ensure i pack a few extra days of Flolan now!! (meds already have a suitcase to itself) Normally take an extra strip of oral meds if we're away from home anyway.
Spoke to GOSH and harriette said it shouldnt be a problem but will pop a letter in the post anyway to take with us..just in case! Thanx again for all your helpx |
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Rebecca and Darren x
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becks
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Joined: 07-September-2007 Location: United Kingdom Posts: 422 |
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Posted: 28-June-2010 at 2:05pm |
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Have a great holiday |
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Find one thing every day that makes you smile. Do one thing every day to make someone else smile
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darren.rebecca
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Joined: 07-July-2008 Location: United Kingdom Posts: 145 |
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Posted: 01-July-2010 at 6:58pm |
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Thanx, only 4 more sleeps!!!
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Rebecca and Darren x
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Kaye
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Joined: 21-November-2004 Location: United Kingdom Posts: 205 |
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Posted: 01-July-2010 at 8:16pm |
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Hello.
Hope you have a fab time. We have been twice with Kaylee, second time we knew what was what. Both times we had a covering letter from GOSH, and we went on Eurostar with know problems. Second time I was able to book eurostar disabled tickets and we all travelled in first class with wider seats and space for Kaylees large disabled buggy. The handy thing was, was that although our seats were standard £60 ish return and Kaylee's slightly cheaper, we all got a meal included and drinks etc. So the extra space and food was a real plus. Eurostar this end be prepared to take every thing off the buggy, ie, anything in buggy pockets, anything in buggy basket, its all put in a tray and goes through machine, so make sure your not standing there forever taking every bit if paper or toy wrapper, tissues toys anything at all off the buggy. I have pockets galore on my buggy, it took me ages. The same for coming back. When get off train at eurostar Paris, I'm afraid there is only 1 lift for the whole eurostar train and its tiny, which is absolutlely ridiculous, almost everyone just que's for the escalator. But that can be dangerous depending on how much luggage u have. Make sure you go to the town hall I think it was and get your pass, its handy for que jumping and you also get special allocated spaces when the parades are on. Getting your case at station, if you used disney to take it back to station, is awlful. Leave an hour before getting on the train to get it as that is chaos. I know I've pointed out alot of the bad stuff, but once you know this you can work with it and then enjoy your holiday. We had the best time, so enjoy it all. Anything else you might want to know, just ask and hopefully I'll have the answer. Have a lovely time. Kaye x |
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Kind regards
Kaye Mum to Kaylee 9 yrs who has a complete AVSD and PH. |
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chrisanne
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Joined: 12-May-2008 Location: United Kingdom Posts: 93 |
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Posted: 19-July-2010 at 10:22am |
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Hi ya,
Hope your hols to Disney was brilliant and no problems with transport. I'm sure you and your girls had a funtastic time there, it does look great .... I would love to take Connor but not sure if the distance is a wee bit too far, he gets a bit travel sick... did you find the travelling easy going? any info or advice on that would be great ....any pics?
xxx
take care
Chrissie
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darren.rebecca
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Joined: 07-July-2008 Location: United Kingdom Posts: 145 |
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Posted: 20-July-2010 at 11:41am |
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They had an absolute ball... the travelling was a 2 hr train ride!!!No probs with meds or oxygen.
Connor would love it.... we went to mickeys cafe to meet the characters and Brooke actually squealed with excitement on seeing mickey mouse haha Will put some pics up xxxxxxxxxxx |
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Rebecca and Darren x
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Rita Barnard
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Joined: 26-November-2004 Location: Wales Posts: 775 |
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Posted: 20-July-2010 at 1:00pm |
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Glad you had a super holiday it's a kids paradise,
well adults too I remeber I was like a big kid when
we went there. No problems with med etc., that's great.
Look forward to seeing some pics.
Take care
Rita x
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To receive a smile, give one away
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karen
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Joined: 22-November-2004 Location: United Kingdom Posts: 2299 |
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Posted: 20-July-2010 at 1:12pm |
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Me too so glad you had a great time, I too loved this place. I cant wait to see your photo's
. glad the kiddies enjoyed it all and you never had any probs. How wonderful x
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Jets
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Joined: 04-October-2006 Location: United Kingdom Posts: 924 |
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Posted: 20-July-2010 at 8:38pm |
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So glad you all had a fab holiday!! |
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Lupus for 27 years or more and secondary PAH for 5 years but only diagnosed in Sept 2006
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