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swollen feet +ankles

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cometstar View Drop Down
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Post Options Post Options   Quote cometstar Quote  Post ReplyReply Direct Link To This Post Posted: 27-July-2010 at 2:26pm
Dear mspotatohead

sorry I don't know your name , I just wanted to say I hope you get your swollen legs   sorted out real soon, Smile  I to had  a PEA  at papworth in February this year , your are very brave and un fortunate to have to have it done twice , as I know what a challenge it can be , All my best wishes to you , hope your feeling better real soon , maybe you should contact your specialist centre , I had  fluid around my heart 4  months post op I was treated with  extra diuretics , it made me very breathless and fatigued , .. But I am a lot better now ,papworth soon sorted me out , I really think you should seek medical advise , 

Take care best wishes michelle Smile
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joanielg View Drop Down
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Post Options Post Options   Quote joanielg Quote  Post ReplyReply Direct Link To This Post Posted: 27-July-2010 at 3:40pm
Hi All,

Over here in my area of Aussieland it is cold (winter) and currently 1C outside and my ankles are still up like balloons.  I'm on frusemide and spiractin and adjust them as needed but have also been seeing an occupational therapist who specialises in lymphatic massage.  She prescribed compression stockings which I wear most of the time but also she gave me the following tips which seems to work.

Sit with my feet up as much as possible during the day
Don't spend more than an hour at a time at the computer before getting up and walking around
Drink my allowed amount of water to keep my system working
Have feet raised when in bed at night - I put a pillow in the bed and it works fine.

Since I've been doing this my leg swelling has gone down and stayed down.

Joan in Australia

PRESIDENT PHA Australia 2010
DX IPAH 12/2004
O2 24/7, CPAP
Frusemide, Nifedipine, Spiractin
Off Sildanifil 11/09
Started Ambrisentan 11/09
Back on Coudamin after 2 years
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njm View Drop Down
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Post Options Post Options   Quote njm Quote  Post ReplyReply Direct Link To This Post Posted: 27-July-2010 at 9:06pm
Good luck at clinic on the 4th Sandie and Lynn. Might get to meet you for a coffee one day (i'm there on the 17th!!)
 
Feel we need another Family Day for Glasgow -might need to ask Agnes when I see her!!
 
Take care, Nic xx
 
Keep smiling, Take care, Nicola x
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sandie68 View Drop Down
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Post Options Post Options   Quote sandie68 Quote  Post ReplyReply Direct Link To This Post Posted: 27-July-2010 at 9:33pm
thankyou nic, how are you?well i hope. i've never been to family day out at glasgow yet.i'll have to ask about it.hope we can get that coffee together one day eh. xx
I PRAY EACH NIGHT THAT ONE DAY THERE WILL BE A CURE
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LozK View Drop Down
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Post Options Post Options   Quote LozK Quote  Post ReplyReply Direct Link To This Post Posted: 27-July-2010 at 10:03pm
I've found that fizzy drinks can increase retention plus some of your meds can cause retention as side-effects.
Simples!!!
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Miriam View Drop Down
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Post Options Post Options   Quote Miriam Quote  Post ReplyReply Direct Link To This Post Posted: 28-July-2010 at 12:15pm
It works like this:  if you're staying home, you don't pee much.  If you're going out, you spend most of your time peeing!  LOL
 
I'm a true believer of the feet up rule.  I think that it's normal for the left ankle to swell more.
 
Ladies, hope your appointment goes well.
Laugh, Love, Live
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sandie68 View Drop Down
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Post Options Post Options   Quote sandie68 Quote  Post ReplyReply Direct Link To This Post Posted: 28-July-2010 at 12:50pm
thankyou miriam,  what a great relieve i have found it sleeping with my feet raised on pillows at night..x
I PRAY EACH NIGHT THAT ONE DAY THERE WILL BE A CURE
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Jack View Drop Down
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Post Options Post Options   Quote Jack Quote  Post ReplyReply Direct Link To This Post Posted: 28-July-2010 at 5:40pm
One thing that can cause fluid retention is also salt so its best to keep an eye on what salt you are taking in. I think its always best not to leave it out completely but not add it to meals.
Today may have been bad but tomorrow could be a whole lot better.
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lynn View Drop Down
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Post Options Post Options   Quote lynn Quote  Post ReplyReply Direct Link To This Post Posted: 29-July-2010 at 9:47am
Hi Nic
 
Been to a couple of family days but it used to be Jim who organised them.  The last one I was at was in the Beardsmore Hotel, infact I used to print the invitations for him :).
 
Shame you wont be there on Wednesday tho, hopefully meet up soon.
 
x
Life is definitely worth fighting for, Mega Hugs x
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mspotatohead View Drop Down
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Post Options Post Options   Quote mspotatohead Quote  Post ReplyReply Direct Link To This Post Posted: 31-July-2010 at 11:09am
I find that some days I don't pee as much as normal, or hardly at all.

When I asked Papworth about it, the only explanation they could come up with was my being female and it being linked to my menstruation cycle.... Only I don't agree with them.

Some days I pee for England, others I don't - especially the afternoons.

They say that my heart is engorged with fluid and there is fluid around it, so it's imperative I take my WTs every day without fail (which I understand) however I don't understand why, if there is fluid in my body, why it's not being taken and why I'm not peeing allll the time.

Mind you, I am quite glad of the respite sometimes - every twenty minutes or so can be rather irritating for me, let alone when I am trying to be out and about or - even worse - travelling!
Life is short,
Break the rules,
Forgive quickly,
Kiss slowly,
Love truly,
Laugh uncontrollably,
And never regret anything that made you smile.
Live for today.
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Jack View Drop Down
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Post Options Post Options   Quote Jack Quote  Post ReplyReply Direct Link To This Post Posted: 31-July-2010 at 11:30am
Everyone who I have spoken to who takes these tablets gets days where they pee for England and days when they don`t pee so much. I think its probably to do with the amount of fluid you are drinking. The tablets will not get rid of all the fluid it just gets rid of a certain amount to help your body and especially your heart cope with the fluid.In time they may up the doze to help you more and ask you to try to restrict your fluid intake.You are at the best hospital so they will do all they can to help you and make things easier. Good luck and keep us informed how your getting on.
Today may have been bad but tomorrow could be a whole lot better.
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