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DLA Renewal forms |
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amandahale 
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Joined: 24 Oct 2010 Points: 35 |
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 Topic: DLA Renewal formsPosted: 08 Oct 2011 at 11:28am |
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Hi Everyone!
I received a letter this morning about my DLA, It needs to be reviewed as They only awarded me 2 years! Thing is I didn't photocopy my last form  ! Can anyway give me pointers what to write? I got refused the first time and dont want to get refused this time!Cheers xxx
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DX with IPAH 2008, VSD repair age 4.
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Karen
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Joined: 21 Oct 2010 Location: Essex Points: 558 |
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Posted: 08 Oct 2011 at 3:07pm |
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Amanda do you have a place in Wales Called DIAL ?I think this place would help you out with filling in the forms and knowing what to write etc. I went to our one when i had to do mine and they were excellant at helping out. http://www.dotcomunity.co.uk/dcu3_resources_for_disabled.php?type=Provider&id=17040&l2=4&l3=16&l4=51&area=60&local=Gwent good luck to you.
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njm
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Joined: 21 Oct 2010 Location: Fife, Scotland Points: 55 |
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Posted: 08 Oct 2011 at 6:40pm |
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Amanda
Could your specialist nurse not help out - ours in Clydebank are happy to help.
Good luck with your application - I hate filling these forms in.
Nic xx
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Miriam
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Joined: 25 Oct 2010 Points: 240 |
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Posted: 08 Oct 2011 at 7:35pm |
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Write about the very worst day you've ever had.
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Live, Love, Laugh!
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margwxs
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Joined: 21 Oct 2010 Location: Cornwall UK Points: 237 |
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Posted: 12 Oct 2011 at 7:07pm |
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Hi Amanda - As Mirium says, tell them in detail about what you are like on your worst days. The forms appear to be asking the same question on several pages, almost as if they hope to trip you up, though they carefully word it slightly differently. Where this happens, repeat your answer on each page. Give them every minute detail!!! Where they ask you how long it takes you to do something, tell them you don't carry a stop watch arouind with you. Ask them to send a "Time and Motion" specialst to time everything you do!!
Also as suggested, get local disability group such as DIAL and also your PH nurse or PH social worker to help you fill them out. Before you send the forms back, please get a copy of them to keep for future reference. There is no way I could remember what I wrote 2 years ago!! Sometimes I can't remeber what I wrote a week ago!!! Good luck with it, and if turned down, go to a tribunal. (When you put your PH diagnosis on the form, put it in capital letters and put at the side THIS IS NOT TO BE CONFUSED WITH NORMAL HYPERTENSION!!!) You could always dowlaod an explanation of PH and attach it securely to the form!!! Margaret |
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Music makes the world go round
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Carole
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Joined: 26 Aug 2011 Location: Halifax Points: 459 |
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Posted: 13 Oct 2011 at 9:21pm |
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Hi, I hope that you get this sorted out. I have also been refused it although I am an PH patient. They did allow it in the first year but this second year it has been refused. I am going to take this to a tribunal as my husband has to do so much for me and I am constantly dizzy. I would never go out on my own and at this moment in time have spent the last three days in bed. They have no idea of this terrible illness, I wish you luck. Carole
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CA
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Annie**
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Joined: 08 Nov 2010 Location: bucks uk Points: 317 |
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Posted: 13 Oct 2011 at 11:01pm |
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All we can do is try out best to teach these people what we have to tolerate every day. we need to make sure they see us on our worst days and also to fill out all forms with our worst days in mind.
good luck everyone filling in these forms.
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kadymd
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Joined: 21 Oct 2010 Location: Hampshire Points: 131 |
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Posted: 14 Oct 2011 at 2:50pm |
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Hi Carole
make sure you get letters form your specialist centre to back your claim and take with you to your tribunal Good Luck Kady
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it takes more muscles to frown than it does to smile so keep smiling
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amandahale
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Joined: 24 Oct 2010 Points: 35 |
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Posted: 26 Jan 2012 at 12:17pm |
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Ho Carol
Did you sort your DLA after? I am still awaitinga decision! xx
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DX with IPAH 2008, VSD repair age 4.
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margwxs
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Joined: 21 Oct 2010 Location: Cornwall UK Points: 237 |
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Posted: 26 Jan 2012 at 3:32pm |
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Amanda
I can't believe you have been waiting since you first posted about getting your renewal form back in October!!! That is terrible. I would phone them up if I were you, and ask them exactly what they are playing at, keeping you waiting this length of time. Because you have had it before, then it should just be a matter of rubber stamping your forms and giving it to you!! These people who work for DWP just have no idea and are not medically trained!! For the knowledge they possess, you could get a chimpanzee to do better, and he would only be paid PEANUTS, not large salaries and pensions like these clowns get!!!!  RegardsMargaret |
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Music makes the world go round
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TonyS
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Joined: 28 Dec 2011 Location: southampton Points: 45 |
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Posted: 27 Jan 2012 at 9:43am |
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One thing to remember is that you have to keep repeating yourself
Ie if you put "i get brethless when I do this activity" repeat that in every box where it applies
To be honest unless you are expert.... get help!
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amandahale
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Joined: 24 Oct 2010 Points: 35 |
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Posted: 27 Jan 2012 at 10:14am |
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Thanks Margaret lol x
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DX with IPAH 2008, VSD repair age 4.
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Carole
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Joined: 26 Aug 2011 Location: Halifax Points: 459 |
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Posted: 27 Jan 2012 at 11:30am |
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Hi,
I did get my ddvla after telling them I wanted to go to tribunal. I took copies from the website of this disease. i made sure I looked up the ones that looked the worse!!!!! Not that it is not terrible for us all it is but some of the sites do not let it seem to be as bad as it is for us. I think I took mine from wilkopedia. I received a letter back saying that they approved my claim so I did not have to go to tribunal after all. Good luck. Carole
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CA
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margwxs
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Joined: 21 Oct 2010 Location: Cornwall UK Points: 237 |
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Posted: 27 Jan 2012 at 4:21pm |
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I have never had any problem getting DLA - no medicals or tribunals!!! I have been getting it since long before I was found to have PH. However, as Tony says - keep repeating yourself over and over in the answer boxes, don't just presume that as you have written it in one answer box on one page, that thes brainless people will even remember what your answer was by the time they turn over page, if they bother to turn it over that is!!!
Also find the longest most technical words for everything!!!! Margaret |
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Music makes the world go round
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Richard
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Joined: 25 Oct 2010 Location: Shropshire Points: 53 |
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Posted: 28 Jan 2012 at 12:56am |
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The DLA is an extremely valuable benefit, and at its highest level entitles the holder to a motor-vehicle that is supplied free, if you choose, with no insurance or maintenance charges to pay for. Even the tyres are replaced free of charge.
Unfortunately, like every other benefit, it has been subjected to widespread abuse; where it has supplied a short-term need, the recipient completely 'forgets' to cancel their benefit when their health returns to normal. There are cases of DLA vehicles being used as taxis and delivery-vans. One guy had a fleet of taxis, all generously supplied, insured and maintained by the Benefits Agency. In the past, I seem to recall that the staff dealing with applications for DLA had little understanding of any difference between 'hypertension' and 'pulmonary hypertension.' Totally different conditions; that has now been overcome, thankfully. You can perhaps understand why you should need to persevere: you know how ill you feel, you know the limitations you have to endure during your daily life and that to make sure the guy dealing with your application understands that you are genuine you need to tell him more than once. And, once your application is approved and you are receiving DLA for a condition that is as life-threatening as PH, you will never need to apply again. Richard
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knowledge is for sharing
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Annie**
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Joined: 08 Nov 2010 Location: bucks uk Points: 317 |
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Posted: 28 Jan 2012 at 3:17am |
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this hypertension word is a bug bear to us all and trying to make people understand what it is can be so frustrating. maybe we should be finding another word for hypertension - maybe a latin or greek word - so that general people will not just think we have high blood pressure
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joanielg
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Joined: 24 May 2011 Location: Australia Points: 106 |
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Posted: 28 Jan 2012 at 12:24pm |
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I agree we need another title for P Hypertension. Most people, worldwide, only hear the "hypertension" and nothing else and we are labelled as the normal BP. With some people it doesn't matter how much we try and explain they still don't get it.
Tinme for a change I think. JoanieLG aka Aussie Joan  |
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margwxs
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Joined: 21 Oct 2010 Location: Cornwall UK Points: 237 |
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Posted: 28 Jan 2012 at 2:41pm |
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I definitely agree that the "Hypertentsion" should be removed and replaced with something different. However I also think that the people who read through our forms need to have a suitable medical qualification!! Not just a civil servant penpusher, who knows nothing!!! I think I scared them off well and truly the last time I applied for DLA, as at that time I didn't know I had PH, but told them I suffered from ARACHNOIDITIS!! Most Doctors don't know about this condition, and there are no specialists in it either!! Probably because for a Dr to specialise in it, they have to acknowledge that it was caused by one of their colleagues!!!! Many Drs refuse to say it exists, but I insist on it being written on all my records, now I know for sure I have it!!! (Most likely the last DWP person to read my forms thought it was a bad case of being scared off by spiders!!)
There is now a document out that tells you exactly how many points everyone needs to be able to get the new benefit being brought in to replace DLA.. If anyone is interested please send me PM and I will send tyou the link, as I don't know if I am allowed to add weblinks directly to messages on the forum. You will certainly benefit from reading it, as you will know exactly what is expected of you to receive this benefit in future. Regards Margaret |
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Music makes the world go round
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Carole
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Joined: 26 Aug 2011 Location: Halifax Points: 459 |
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Posted: 06 Mar 2012 at 2:14pm |
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Hi,
did you manage to get your DVLA sorted out to your satisfaction yet. Hope so Carole
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CA
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Chriss
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Joined: 12 Apr 2012 Location: Luton, Beds Points: 6 |
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Posted: 06 May 2012 at 11:05pm |
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I've found that if I tell people I've got Pulmonary Hypertension they just look at me blankly...
Now I simply tell them I've got Heart Failure - That puts the wind right up 'em! On benefit forms etc I put - Heart Failure (Pulmonary Hypertension). It gets peoples attention pretty quick - how many of us had heard of PH before being diagnosed - not me that's for sure. Hope that's of some help |
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