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constant coughing |
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Aleksandr 
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Joined: 21 Oct 2010 Points: 209 |
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 Posted: 01 May 2012 at 5:14pm |
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Lansoprazole was the first medication my centre put me on as my cough was the usual heart failure induced reflux.
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Simples!
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Peto
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Joined: 08 Apr 2012 Location: Cardiff Points: 52 |
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Posted: 02 May 2012 at 2:14pm |
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Hi everyone
Its actually Peta rather than Peto (didnt realise what I had put when joining) grandmother. Still coughing, asthma inhalers have helped a bit. Did not see local consultant on Monday just registrar but going again in 2 months and hope to see him then. Might ask GP about acid reflux in the meantime. Might go to the conference in October so hope to see some of you then.
Peta
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jim31237
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Joined: 04 Apr 2012 Location: fife.scotland Points: 48 |
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Posted: 17 May 2012 at 7:10pm |
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hi everyone re/ Bernadettes constant cough. At her visit to golden jubilee specialist unit the specialist sugested athsma. And gave her a letter for the GP to do the athsma tests sugesting an inhaler might be of use. BEST WISHES jim+bernadette.
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jim partner of bernadette who suffers from idiopathic pulmonary arterial hypertension and diabetes.
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njm
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Joined: 21 Oct 2010 Location: Fife, Scotland Points: 55 |
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Posted: 17 May 2012 at 8:04pm |
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Hope the inhalers help - i'm asthmatic as well as having ph - was discovered during one of the tests for ph - i'm on a seretide steriod inhaler and have salbutamol for day to day use as needed (usually more when I've got a cold).
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Ken\'s Barbie
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Joined: 30 Apr 2012 Location: West Lancs Points: 178 |
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Posted: 17 May 2012 at 9:02pm |
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I had a constant cough which disappeared when I went on medication. The only time it came back was while I had a virus and then disappeared after seven weeks
I do suffer from reflux
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Good humoured positivity is far better than grumpy negativity
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Peto
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Joined: 08 Apr 2012 Location: Cardiff Points: 52 |
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Posted: 18 May 2012 at 8:44am |
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Hope the asthma medication works for you. I was put on it 2 months ago as suggested by Papworth to local consultant, not that I had asthma but it might open the bits of my lung that has problems. It seemed to be working but now I have cough/cold/sore throat so difficult to tell. I had got a bit fed up wirh people saying "Oh you have got a bad cough" and moving to sit somewhere else!
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Annie**
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Joined: 08 Nov 2010 Location: bucks uk Points: 317 |
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Posted: 21 May 2012 at 4:27pm |
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Anyone seen the recent TV ads about coughing - bit of a joke really --- it says ----- if you have had a cough for more than 3 weeks see your doctor as it could be lung cancer ----- who would authorise such an advert -- beats me????
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jim31237
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Joined: 04 Apr 2012 Location: fife.scotland Points: 48 |
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Posted: 21 May 2012 at 7:13pm |
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me and bernadette was just talking about these adds other night most gps are appointement systems now sometimes 2 weeks or more so ad imagine a lot a people very worried with the coughing till they get seen by gp. best wishes jim+Bernadette. |
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jim partner of bernadette who suffers from idiopathic pulmonary arterial hypertension and diabetes.
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margwxs
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Joined: 21 Oct 2010 Location: Cornwall UK Points: 237 |
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Posted: 21 May 2012 at 7:26pm |
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Annie - That was exactly my thoughts too, when I first saw the advert!! Can imagine the queue, all coughing and spluttering in the waiting room at GP's!! Knowing what it is like to even get past the receptionists in many practises, most wouldn't get any where near a GP!!
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Music makes the world go round
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jim31237
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Joined: 04 Apr 2012 Location: fife.scotland Points: 48 |
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Posted: 08 Jul 2012 at 11:09pm |
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hi everyone wee update on bernadettes constant cough after extensive and exhausting athsma tests the athsma clinic has decided she dosent have athsma so wont be getting the inhaler
 she is disapointed at this as she thought the inhaler would do the job but not to be so its carry on coughing until someone can diagnose the exact problem we now are positive its the IPAH causing the cough. i do have a cure mines is earplugs which i insert each night before bed  best wishes jim+bernadette.
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jim partner of bernadette who suffers from idiopathic pulmonary arterial hypertension and diabetes.
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nicky
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Joined: 23 Oct 2010 Location: Leicester Points: 21 |
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Posted: 09 Jul 2012 at 5:28am |
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When I had ph I always seemed to have a dry cough, it was put down to the ph.
Double lung transplant aug 2003. Chronic rejection. Bronchioliotis obliterans, stroke, but still here.
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Double lung transplant for PPH. Stroke. Bronchioliotis obliterans. Chronic rejection. Oxygen.
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Sue
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Joined: 13 Jun 2012 Location: Isle of Man Points: 55 |
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Posted: 09 Jul 2012 at 2:06pm |
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Hi everyone,
Coughing? Initially my coughing was so bad that I was vomiting every night and lost about 2 stone. My gp did nothing much until finally he referred me for ashma testing. This was back in 2008, I was classified as having ashma but the coughing didn't totally go away. Now 4 years later have been diagnosed with ph (thay are not sure of the cause yet so am not get any treatment) but meanwhile all the inhalers have left me with an adrendaline problem! and they now don't think I have ashma at all. Meanwhile the coughing goes on.. albeit nowhere as bad as it once was. "Oh I don't like the sound of your cough" really annoys me but hey, if that's all that annoys people about me can't be too bad!!! Take care all, Sue
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When you help someone up the hill you get nearer the top yourself :-)
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jim31237
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Joined: 04 Apr 2012 Location: fife.scotland Points: 48 |
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Posted: 02 Aug 2012 at 1:15am |
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hi everyone just a wee update on bernadettes athsma tests the athsma tests came back negative. but although she dosent have athsma her gp didnt have any objections to putting her on the salbutamol blue inhaler as she finds this beneficial when the cough wakens her at night so on wakening with the cough a puff on the inhaler realy helps her get back to sleep. so we have came to the conclusion the cough is another symtom of the IPAH. best wishes jim+bernadette.
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jim partner of bernadette who suffers from idiopathic pulmonary arterial hypertension and diabetes.
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Sherry
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Joined: 03 Aug 2012 Location: Reading Points: 18 |
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Posted: 08 Aug 2012 at 9:09pm |
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Hi,
I have only recently been diagnosed with PPH and I am new to this site. I was admitted to Royal Berks initially as an emergency from clinic. Spent 3 weeks in there, then referred to Hammersmith. You are all mentioning dry coughs but one of my symptoms was I was coughing up loads of white sticky stuff every night. Getting hardly any sleep at all because the minute I lay down this cough would start. I was awake coughing all night. Royal Berks put me on IV steroids for three days then long term 30mg steroids a day (since May). For some reason my cough cleared but is now coming back but different - still not dry but different (still coughing up phlem!). Has anyone else had this type of cough? I have just posted a new topic on here and if anyone can answer some of my questions I would be very grateful. Sherry
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jet
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Joined: 21 Oct 2010 Location: Reading Points: 349 |
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Posted: 11 Aug 2012 at 12:53pm |
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My cough is a very dry whooping like cough, very dry and it comes and goes. My chest feels very tight and I cough until I am sick. My dr's say it is nothing to do with PH???? But after 6 years I'm used to it now lol x
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Had Lupus for at least 27 years diagnosed with secondary PH in 2006
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Dorothy
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Joined: 01 Aug 2012 Location: Wales Points: 10 |
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Posted: 11 Aug 2012 at 2:13pm |
 I was told that my cough is probably due to pressure from my lungs. It's worse at night but can start up anytime, any place. It's so annoying and can be embarrassing at times.Dorothy.
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Ken\'s Barbie
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Joined: 30 Apr 2012 Location: West Lancs Points: 178 |
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Posted: 11 Aug 2012 at 3:47pm |
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I had a cough for two years and my gp surgery kept telling me that it was something a lot of people had and it would go. When I saw a new doctor at the surgery he was shocked that nothing had been done. Wonder what they're saying now when the media is full of advice about seeing the doctor if you have a cough for longer than three weeks?
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Good humoured positivity is far better than grumpy negativity
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jim31237
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Joined: 04 Apr 2012 Location: fife.scotland Points: 48 |
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Posted: 17 Aug 2012 at 2:48am |
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hi dorothy. we were at benadettes specialist unit on tues 14th Aug and while doing the 6mnt walk test her cough was very noticable and the diagnosis given was as you said pressure on the lungs. so your first to get it right award is in the post....
.....best wishes jim+bernadette.
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jim partner of bernadette who suffers from idiopathic pulmonary arterial hypertension and diabetes.
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jim31237
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Joined: 04 Apr 2012 Location: fife.scotland Points: 48 |
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Posted: 02 Oct 2012 at 12:58am |
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hi everyone re/bernadettes selexipag drug trial since being on the trial the constant coughing she had hasnt disapeared completely but it certainly has eased of big time so apart from the headache i mentioned in another post she has a very positive outlook on this drug although 8 tabs in morning and 8 at night of the selexipag along with the other tabs she takes i have noticed her being in a very positive mode which again i sincerly hope in the long term helps all other ph sufferers best wishes jim+bernadette
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jim partner of bernadette who suffers from idiopathic pulmonary arterial hypertension and diabetes.
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Carole
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Joined: 26 Aug 2011 Location: Halifax Points: 459 |
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Posted: 02 Oct 2012 at 10:20am |
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Jim,
So pleased Bernadette has improved since being on the meds. Long may it continue and many many thanks for updating us Carole xxx
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CA
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