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Karen 
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Joined: 21 Oct 2010 Location: Essex Points: 558 |
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 Posted: 13 Nov 2010 at 12:27pm |
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Hi Sandie Sorry to hear you have been feeling so poorly. I do hope you soon feel better. My what a lot of fluid you had no wonder you felt dreadful, it is so scary when you are feeling so ill. Take care and hope all goes well at the hospital. xx
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lisa .x.
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Joined: 25 Oct 2010 Location: manchester Points: 49 |
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Posted: 15 Nov 2010 at 5:56pm |
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Hi sandie hunn ,
OH-MY-FLIPPIN-GOD what a ruff, ruff- flippin ruff time you have had ay hunn . hows thing going at the minuet ? Hope your feeling much better, if not much im hoping and praying its just a teeny weeny bit ( as they saying goes " an inch is better than a mile in the right direction "" .x. ) here is a gentle .x.x. Hope by next week you av got that hoover in your hand ,the mop out and Mr Sheen sparkling like crazzeeee . OH and dont forgett to put your you dancing music on and your boogieing that dust reet out of your home, as cleaning is much more acceptable/do-able whilst you have the right tunes on   ( you know im only joking ) But hunn seriously i do hope by next week your on the better side of this hunn .x.x. Take care hunn .x. lisa .x.
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lisa .x.
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sandie68
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Joined: 03 Nov 2010 Location: scotland Points: 39 |
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Posted: 17 Nov 2010 at 8:17pm |
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hello again,
well went to see consultant today, they taking me in to hospital on friday. they going to try me on a nuebelizer,is anyone else using it? really had to drag myself out of bed this morning. been totaly exhausted, never did 6mwt today either.i have been getting alot of cramp in my feet, and when i twist around my sides are all like getting crampy like pains to. ive turned my oxygen up aswell,felt as if i was barely breathing last night. also to see transplant team on arrival at hosp b4 go up to ward on friday, for review but still scared, just all cosy on sofa keeping warm n resting. no energy at all. hate this damn illness...xsandie xxx
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praying for a cure
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Kathryn
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Joined: 26 Oct 2010 Location: UK Points: 145 |
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Posted: 17 Nov 2010 at 8:57pm |
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Hi Sandie, I use a nebuliser for my Iloprost (ventavis), I don't know whether its this they' re going to give you - if it is let me know and I will pm you about what to expect. Hope you feel better soon, stay resting, Kathrynx
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sandie68
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Joined: 03 Nov 2010 Location: scotland Points: 39 |
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Posted: 17 Nov 2010 at 9:24pm |
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oh thanx kathryn,
it is the same meds, and every peice of advice will be appreciated. will have to use it 7 times a day. just totally exhausted. 6wks ago was managing IT course 9hours a week,plus driving lessons, and wee stroll around asda's etc. can barely do anything at mo. mabey few days in hosp do me good, sandie x
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praying for a cure
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sandie68
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Joined: 03 Nov 2010 Location: scotland Points: 39 |
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Posted: 18 Nov 2010 at 3:45pm |
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phoned and told specialist nurse, im not up for seeing transplant team. my dad was suppossed to be going with me, but because im getting admitted aswell, transport wont wait to bring dad home again. im not having him wondering about glasgow on own trying to get buses home., he is 77. they saying it is just a review but if they wer to say right we want you to go on list, dont know how ill cope especially on my own..gona try get appointment to see them in feb instead xxsandiexx
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praying for a cure
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lisa .x.
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Joined: 25 Oct 2010 Location: manchester Points: 49 |
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Posted: 18 Nov 2010 at 4:00pm |
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Hi sandie hunn ,
its so frightening , is this the first appointment you have had with the transplant team ? thinking of you hunn .x. lisa .x.
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lisa .x.
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Miriam
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Joined: 25 Oct 2010 Points: 240 |
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Posted: 18 Nov 2010 at 6:02pm |
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Sandi, I know it's very frightening but there's only a very small window between being able to have a transplant and being too sick to have one.
If it's only a review, if I were you I'd go for it tomorrow. No decisions are going to be reached from the sounds of things and they probably just want to find out more about you. Be brave.
Hope everything goes ok in hospital.
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Live, Love, Laugh!
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sandie68
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Joined: 03 Nov 2010 Location: scotland Points: 39 |
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Posted: 18 Nov 2010 at 7:05pm |
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not going in tomz at all now, got new appointment to get admitted on tuesday., hopefuly i will get another appointment for february to see transplant team. i have seen team b4. dont fancy being stuck in over wknd anyway, im sure ill do without nebuliser for another few days. feel absoulutley much better today,this is a crazy illness. eh?xxsandiexx
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