Welcome!!

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Hi all 
I have not posted for a while but i would like to say welcome to all our new members - if you use facebook we are on there to!

I have read your stories and as usual some of you have had a long and difficult road to diagnosis. But the important thing is that you now have the diagnosis and your centre will work out the best medication to keep your type of PH stable. Thety will also refer some on for transplant. We all have a challenging road but the important thing is to keep positive and enjoy life inspite of the restrictions the condition may put on us. Push the boundaries but not too far and listen to your body it will tell you when to rest. 
It takes up to 18 months to get your head around the condition so take time, take care and ask questions.

Kady

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kadymd Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Hampshire Points: 131	Post Options Post Reply Quote kadymd Thanks(0) Quote Reply Topic: Welcome!! Posted: 10 Jul 2012 at 3:53pm
	Hi all I have not posted for a while but i would like to say welcome to all our new members - if you use facebook we are on there to! I have read your stories and as usual some of you have had a long and difficult road to diagnosis. But the important thing is that you now have the diagnosis and your centre will work out the best medication to keep your type of PH stable. Thety will also refer some on for transplant. We all have a challenging road but the important thing is to keep positive and enjoy life inspite of the restrictions the condition may put on us. Push the boundaries but not too far and listen to your body it will tell you when to rest. It takes up to 18 months to get your head around the condition so take time, take care and ask questions. Kady
	it takes more muscles to frown than it does to smile so keep smiling

Ken\'s Barbie Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 30 Apr 2012 Location: West Lancs Points: 178	Post Options Post Reply Quote Ken\'s Barbie Thanks(0) $Quote Ken\'s Barbie$ Quote Reply Posted: 10 Jul 2012 at 3:55pm
	Thank you for the welcome. You're right it does take time Barb
	Good humoured positivity is far better than grumpy negativity

kimmy16 Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 22 Jul 2012 Location: Hampshire Points: 9	Post Options Post Reply Quote kimmy16 Thanks(0) Quote Reply Posted: 24 Jul 2012 at 1:25pm
	Thank you for your welcome, I am new to the forum, only being diagnosed a week ago, waiting for my first appointment at Royal Brompton, I am 48, married with 2 sons, this is all a bit scary and not sure what is going to happen in next few weeks, but I have found this site to be very useful
	kim pearce

staciep90 Members Profile Send Private Message Find Members Posts Visit Members Homepage Add to Buddy List Member Joined: 22 Apr 2011 Location: Swindon Points: 171	Post Options Post Reply Quote staciep90 Thanks(0) Quote Reply Posted: 24 Jul 2012 at 1:54pm
	Welcome Kim!!!!
	Life is worth the fight :o)

Rita Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Brecon Wales Points: 397	Post Options Post Reply Quote Rita Thanks(0) Quote Reply Posted: 24 Jul 2012 at 3:06pm
	Welcome Kim it does all feel a bit scary at first but doctors and nurses I have seen are very understanding, hope all goes well for you and please let us know how you are doing. Rita xx
	To receive a smile give one away

Carole Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 26 Aug 2011 Location: Halifax Points: 459	Post Options Post Reply Quote Carole Thanks(0) Quote Reply Posted: 24 Jul 2012 at 6:57pm
	Hi Kim, Welcome to the site. As some have said ask any questions and more than likely somebody will know the answer. Yes it is a scary journey but it,does help,to know that we are travelling on the same road so to speak. You are not alone. Use this site day or night. The tests do seem to be tedious at times but remember they are all for YOUR good so just let them get on with the job they do so well. Keep as well as you can, pleased you have the support of your family Carole
	CA

kasa x Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 17 Jan 2011 Location: hampshire Points: 45	Post Options Post Reply Quote kasa x Thanks(0) Quote Reply Posted: 24 Jul 2012 at 8:26pm
	WELCOME KIM, I ALSO ATTEND THE BROMPTON HOSPITAL.PM ME IF U WANT TO KNOW ANY THING, WERE IN HAMPHIRE DO U LIVE ,I AM FROM GOSPORT X
	kasa x

kimmy16 Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 22 Jul 2012 Location: Hampshire Points: 9	Post Options Post Reply Quote kimmy16 Thanks(0) Quote Reply Posted: 26 Jul 2012 at 9:15am
	Hi Kasa, I live in New Milton, Hampshire, I have always been in good health and all this has come as a bit of a shock, I spent 9 days in Southampton General and at the end of that got diagnosed as having PH, waiting for appointment from Brompton Hospital, just unsure how much walking etc I should be doing, I don't drive so have always walked everywhere.
	kim pearce

Rita Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Brecon Wales Points: 397	Post Options Post Reply Quote Rita Thanks(0) Quote Reply Posted: 26 Jul 2012 at 11:06am
	Hi Kimmy I would say listen to your body it will tell you when your overdoing it, just take things at a more leisurely pace, and I do hope you soon hear from the Brompton. Best of luck Rita xx
	To receive a smile give one away

kasa x Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 17 Jan 2011 Location: hampshire Points: 45	Post Options Post Reply Quote kasa x Thanks(0) Quote Reply Posted: 26 Jul 2012 at 8:17pm
	hi kim i also attend the southampton hospital as well as the brompton,they are both good hospital.hope u get a appointment soon xx
	kasa x

kimmy16 Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 22 Jul 2012 Location: Hampshire Points: 9	Post Options Post Reply Quote kimmy16 Thanks(0) Quote Reply Posted: 28 Jul 2012 at 3:53pm
	Now got an appointment to see Dr Limbrey at Southampton hospital on Thursday 2nd August, so only a few days then hopefully I may get a few answers to help get all this sorted in my head and also to help my hubby and rest of family, thank you for all your kind words and positive comments.