Morbid or Not?

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   Hey guys I'm just posting to ask a little question, and I'm hoping it doesn't offend anyone. 

But I was talking to a friend who has CF and had a double lung transplant a year ago and I was saying how I really want to have a picture of my old heart and lungs and a picture of my new heart and lungs when I get my transplant (I'm planning on taking a million photos just a FYI LOL). She told me how she asked for a picture too but she got told no at Harefield (I'm at Papworth). My co-ordinator said he would do it but my surgeon said this sounded morbid. 

I was just wondering what you guys thought about it and whether you think it's a good idea or not? 

Hope all is well in PH land 
Stacie xoxo 

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staciep90 Members Profile Send Private Message Find Members Posts Visit Members Homepage Add to Buddy List Member Joined: 22 Apr 2011 Location: Swindon Points: 171	Post Options Post Reply Quote staciep90 Thanks(0) Quote Reply Topic: Morbid or Not? Posted: 12 Aug 2012 at 1:09am
	Hey guys I'm just posting to ask a little question, and I'm hoping it doesn't offend anyone. But I was talking to a friend who has CF and had a double lung transplant a year ago and I was saying how I really want to have a picture of my old heart and lungs and a picture of my new heart and lungs when I get my transplant (I'm planning on taking a million photos just a FYI LOL). She told me how she asked for a picture too but she got told no at Harefield (I'm at Papworth). My co-ordinator said he would do it but my surgeon said this sounded morbid. I was just wondering what you guys thought about it and whether you think it's a good idea or not? Hope all is well in PH land Stacie xoxo
	Life is worth the fight :o)

Rita Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Brecon Wales Points: 397	Post Options Post Reply Quote Rita Thanks(0) Quote Reply Posted: 12 Aug 2012 at 11:56am
	Hi Stacie I don't think this is morbid, when I had my PTE I asked for a photo of the clots and they did it, (that was Papworth). Even if I have a tooth out I want to look at it lol, so no I think it is quite a reasonable request. Rita xxx
	To receive a smile give one away

Karen Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Essex Points: 558	Post Options Post Reply Quote Karen Thanks(0) Quote Reply Posted: 12 Aug 2012 at 12:15pm
	Stacie I too am like you, I would like a photo and i dont think it morbid at all. Its all rather interesting isnt it. I would like a video of my RHC ~I found it interesting when they were going up to my heart and lungs . We must be a odd lot lol. Karen x

Dorothy Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 01 Aug 2012 Location: Wales Points: 10	Post Options Post Reply Quote Dorothy Thanks(0) Quote Reply Posted: 12 Aug 2012 at 12:45pm
	In 2006, when the possibility of a heart and lung transplant was mentioned to me, I told my husband that if it went ahead I would ask for DVD of the procedure - whether or not I would have got it, I've no idea, as when I went back to the hospital a fortnight later, I was told that after more discussions, the powers that be had decided even in the organs were to become available, I probably wouldn't withstand the operation. They concluded that I'd more chance of living longer without it. Six years down the line, although life can be a bit of a struggle at times, I'm still alive and kicking! Dorothy.

jet Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Reading Points: 349	Post Options Post Reply Quote jet Thanks(0) Quote Reply Posted: 12 Aug 2012 at 5:06pm
	Not at all morbid!! I would be just like you xxx
	Had Lupus for at least 27 years diagnosed with secondary PH in 2006

staciep90 Members Profile Send Private Message Find Members Posts Visit Members Homepage Add to Buddy List Member Joined: 22 Apr 2011 Location: Swindon Points: 171	Post Options Post Reply Quote staciep90 Thanks(0) Quote Reply Posted: 12 Aug 2012 at 6:22pm
	Awesome good to see I'm slightly normal and not the only one that would want them LOL :o) xoxo
	Life is worth the fight :o)

JAldred Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 02 Nov 2010 Location: North Yorkshire Points: 104	Post Options Post Reply Quote JAldred Thanks(0) Quote Reply Posted: 12 Aug 2012 at 8:36pm
	Hi Stacie, As a scientist, I think that an enquiring mind is a good thing. I too would be interested to see the differences between a normal heart and one with right side enlargement. My trophies so far are an X-ray plate showing my enlarged heart, and a photo from the echo machine showing one of the heart chambers.
	John

staciep90 Members Profile Send Private Message Find Members Posts Visit Members Homepage Add to Buddy List Member Joined: 22 Apr 2011 Location: Swindon Points: 171	Post Options Post Reply Quote staciep90 Thanks(0) Quote Reply Posted: 13 Aug 2012 at 1:06am
	I like to think of it as an enquiring mind to Jaldred :o). Plus my entire life I've never really taken any photos at hospital just because it never crossed my mind but I think my transplant is one I want to remember especially considering the pain meds I'll be on so I probably won't remember half of it. I's also like to be able to see the organs that will save my life and the ones that kept me going this long :o). xoxo
	Life is worth the fight :o)

Carole Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 26 Aug 2011 Location: Halifax Points: 459	Post Options Post Reply Quote Carole Thanks(0) Quote Reply Posted: 13 Aug 2012 at 11:20am
	Hi Stacie, In my opinion not morbid at all. When I had a kidney stone removed it was by the side of my bed when I woke up. These are our bodies and we should take an interest. I do understand if others do not wish to do,this but I would want the same as you. Good luck. Carole
	CA

Carmel Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 29 Mar 2012 Location: Nuneaton Points: 8	Post Options Post Reply Quote Carmel Thanks(0) Quote Reply Posted: 13 Aug 2012 at 12:09pm
	I think it would be interesting to see the difference xx

AngelAli Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 17 Dec 2011 Location: Ely Points: 55	Post Options Post Reply Quote AngelAli Thanks(0) Quote Reply Posted: 13 Aug 2012 at 6:52pm
	Nothing morbid about it all. Wanting to know and understand is something that is to be cherished.

lpegram Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Witney, Oxon Points: 129	Post Options Post Reply Quote lpegram Thanks(0) Quote Reply Posted: 13 Aug 2012 at 7:11pm
	Go for it Stacey :-) think it's a great idea, really interesting.

staciep90 Members Profile Send Private Message Find Members Posts Visit Members Homepage Add to Buddy List Member Joined: 22 Apr 2011 Location: Swindon Points: 171	Post Options Post Reply Quote staciep90 Thanks(0) Quote Reply Posted: 13 Aug 2012 at 9:10pm
	LOL my mum thinks I'm strange, maybe it's because we're ill and we all have a curiosity about it, but I'm excited about my transplant to get the photo LOL
	Life is worth the fight :o)

Aleksandr Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Points: 209	Post Options Post Reply Quote Aleksandr Thanks(0) Quote Reply Posted: 18 Aug 2012 at 9:43pm
	I would definitely want to see my old parts! And a dvd of the op would be great. But having been in theatre many times at work I think you'd strugle with a dvd
	Simples!

kadymd Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 21 Oct 2010 Location: Hampshire Points: 131	Post Options Post Reply Quote kadymd Thanks(0) Quote Reply Posted: 18 Aug 2012 at 9:54pm
	Hi Stacie I have had a PTE and would have loved to have seen a DVD of my op I think it would be fascinating not mrobid at all Take care Kady
	it takes more muscles to frown than it does to smile so keep smiling

staciep90 Members Profile Send Private Message Find Members Posts Visit Members Homepage Add to Buddy List Member Joined: 22 Apr 2011 Location: Swindon Points: 171	Post Options Post Reply Quote staciep90 Thanks(0) Quote Reply Posted: 18 Aug 2012 at 10:13pm
	Oooo can you get a DVD? I'd probably have to pretend I was watching Grey's anatomy or something if I ever got to see it LOL
	Life is worth the fight :o)

george Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 31 Mar 2011 Location: east sussex Points: 22	Post Options Post Reply Quote george Thanks(0) Quote Reply Posted: 05 Sep 2012 at 6:47pm
	hello everyone,well stacie its part of your journey so why not.Ihad my pte in 2002 and they gave me a video of my op which last for 25 mins showing the inside of lungs being stripped which is a bit strange to watch knowing its me but very interesting,mind you i,ve only watched it 4 times xx
	"stop the world i want to get off"

TonyS Members Profile Send Private Message Find Members Posts Add to Buddy List Member Joined: 28 Dec 2011 Location: southampton Points: 45	Post Options Post Reply Quote TonyS Thanks(0) Quote Reply Posted: 08 Sep 2012 at 3:10pm
	I think it is natural to want to see all things that enter or leave your body. Let's face it, given half a chance we all look at the hankie after sneezing, any thing that comes out a spot, etc etc It is also possible that people might need to come to terms with the loss of thier enemy& organs and come to accept thier new organs from someone who has lost thier life. You have to embrace this gift and try to give more back in part 2 of your life in appreciation. To label you as morbid is not recognising just how big a deal this really is.